The Canadian Acromegaly Registry is a Canada-wide registry that captures information from people diagnosed with acromegaly. Information is then used in a variety of ways to improve acromegaly care.
HOW IT WORKS?
Direct-to-patient: Information on quality of life is collected directly from the patients themselves.
In-clinic: Medical information is collected in specialty medical clinics attended by acromegaly patients.https://www.ucalgary.ca/research/participate/study/14830/canadian-acromegaly-registry